Quality of Life of Children with Congenital Adrenal Hyperplasia After Covid-19 Pandemic at Dr. Soetomo Hospital Surabaya
Muhammad Syaichullah Ghazur Ilahi1, Muhammad Faizi2,3*, Ernawati4,5 , Nur Rochmah2,3
Abstract
Background: Congenital adrenal hyperplasia (CAH) is a recessive autosomal disease that affects the synthesis of steroid hormones in the adrenal cortex. Patients with CAH usually have their quality of life affected by symptoms of increased androgens and virilization, the mental burden of daily drug consumption, and anxiety about adrenal crisis. In addition, the COVID-19 pandemic will also affect the quality of life of CAH children. Objective: The aim of the study was to determine the demographic data and quality of life of CAH children after the COVID-19 pandemic at Dr. Soetomo Hospital, Surabaya. Method: This study is descriptive research because it only describes the quality of life of CAH children after the COVID-19 pandemic at Dr. Soetomo Hospital, Surabaya. The design used is Cross Sectional which emphasizes the measurement time at one time. The sample of this study is children to adolescents aged 2-18 years who were diagnosed with congenital adrenal hyperplasia at Dr. Soetomo Hospital, Surabaya. This study uses primary data obtained from filling out the results of the PedsQL version 4.0 questionnaire through Google Forms. Result: The results of the study were obtained from 21 samples who were willing to fill out the questionnaire and 20 samples that were in accordance with the inclusion criteria. The study sample consisted of toddlers (age 2-4 years, n = 6), young children (age 5-7 years, n = 7), children (age 8-12 years, n = 6), and adolescents (age 13-18 years, n = 1). CAH children are dominated by 13 (65%) women. The education of CAH children is the most at the kindergarten level. The education of parents of CAH children is the highest high school level and the highest socioeconomic level is the middle level (1.2 million – 6 million). Conclusion: The quality of life of children with congenital adrenal hyperplasia after the COVID-19 pandemic at Dr. Soetomo Hospital, Surabaya namely the age group of 2-4 years has a total score of 75.6, the age group of 5-7 years has a total score of 76.62 (child report) and 78.42 (parent report), the age group of 8-12 years has a total score of 78.62 (child report) and 76.63 (parent report), and the age group of 13-18 years has a total score of 80.43 (child report) and 82.61 (parent report).
Keywords
congenital adrenal hyperplasia; quality of life; PedsQL version 4.0.
Cite This Article
Ilahi, M. S. G. I., Faizi, M., Ernawati., Rochman, N. (2024). Quality of Life of Children with Congenital Adrenal Hyperplasia After Covid-19 Pandemic at Dr. Soetomo Hospital Surabaya. International Journal of Scientific Advances (IJSCIA), Volume 5| Issue 6: Nov-Dec 2024, Pages 1384-1389, URL: https://www.ijscia.com/wp-content/uploads/2024/12/Volume5-Issue6-Nov-Dec-No.737-1384-1389.pdf
Volume 5 | Issue 6: Nov – Dec 2024
